Finding Maddux: she finally got snow...

she finally got snow...

according to Maddux the snow "makes her belly better"

I finally got a shot of her without her glasses to get the snowflake on her lashes. the snow hurts her eyes!

thanks for looking~ jaime

4 comments:

Anonymous said...: Beautiful.

What a touching blog...when you look back at it over the years you will be so thrilled you documented all these things and accomplishments! She is a sweetie!; January 31, 2009 at 5:25 PM
photographing autism said...: thanks so much sonja! i can not wait to look back on this. even now i can see the differences in her. it really a miracle! jaime; February 10, 2009 at 10:43 AM
Kristi said...: I follow your blog and I want you to know that I feel the exact same way as you do. As a mom of an autistic daughter, you hit the nail right on the head..... it is so difficult because our children LOOK so normal. No one realizes how much is involved and the struggles we have unless they have an autistic child.

Thanks for sharing your thoughts with us. It helps to know I am not the only one!!; April 27, 2009 at 8:55 PM
EWingate said...: Jaime,

I'm not sure if you remember me from Danville or not, but your sister in law Jen sent me your url and mentioned Maddux's story. First, I have to tell you that I am blown away by your photography! I have always had a passion for it and just recently had some time to start fooling with it again before our littlest guy started having problems. We are actually now battling Infantile Spasms on top of a rare brain malformation and multiple seizure types. We are about 1/2 way through with the ACTH treatment. It's a tough road, but we are taking it one day at a time. My passion for photography has only increased in wanting to capture ever moment of Logan's life as well as our 3 year old, Freddie. I wish I had the training to be able to take shots that are even remotely as amazing as yours. Our stories are definitely different, but they certainly share a lot of similarities. We will be praying for you guys on your continued journey and I will follow your blog.

I want to get some shots of our family and I wished we were closer to Raleigh and you. Do you know of anyone in the Charlotte area that you would recommend?

Thank you for sharing your story! I look forward to following it.

Our prayers are with you guys.

Ellen Cross Wingate
http://ourjourney-ew.blogspot.com; October 1, 2009 at 6:18 PM

Her Seizures

Our journey began when Maddux had her first visible seizure cluster at 15 months. After an EEG, her final diagnosis was a rare type of infant seizures called Infantile Spasm Epilepsy. Commonly misdiagnosed as reflux. Her prognosis was that her physical and mental state would not be above mental retardation. After months of trying to find out what was wrong with Maddux, a mother's intuition, we finally had a diagnosis. We were happy to finally have a label so we could start her treatment. After 3 years of different seizure meds, hospitalizations and a special diet, her seizures are now gone. But we consider her in remission. We will never forget the shots of ACTH, the blank, over-medicated stares or the first day she went without 100 seizures. Every night we thank God for giving us another seizure-free day. Even though that was the hardest part of this journey, she was still our Maddux!

But it was our own eyes that saw these great things the Lord has done. Deutoronomy 11:7

Her Diagnosis

During our battle with Epilepsy, Maddux began to slip away from us. Her words stopped, her smiles stopped and she acted as if she were the only one in the room. The toys stayed on the shelves. I would have given anything to have toys to clean up. It was like the love was gone from her eyes. Maddux used to not answer me because she was having a seizure and her brain couldn't "hear" me. Now she was not answering me because she just didn't know the answer. When Maddux turned 2 years old she was diagnosed with Autism . Devastating, yes, but now we could take this diagnosis and find her and bring her back. Even with that label she was still our Maddux.

He performs wonders that cannot be fathomed, miracles that cannot be counted. Job 9:10

Her therapy

Maddux started therapy at 18 months. She began her treatment with in-home OT and PT and as she got older she graduated into Early Intervention. She was in a full day program at Pediatric Therpay Network in Torrance, CA where she had one on one OT, PT and SLP classes as well as group sessions. Words can not express the miracles that happened behind the doors of that center everyday. Maddux was able to work with the most wonderful, caring and knowledgable people who changed all of our lives. I dedicate all of her progress to these wonderful people who I hold dear in my heart. She has come so far and I can not wait to see what lies ahead for her! She is still our Maddux!

I will remember the deeds of the Lord, yes I will remember your miracles... Psalms 77:11

she finally got snow...

4 comments:

Jaime Lackey Photography

Our Maddux

Her Seizures

Her Diagnosis

Her therapy

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