yep. sometimes it feels like this...
and then you see this.
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Constant recovery, continued healing
Jaime Lackey Photography
Our Maddux
Constant recovery, continued healing
Her Seizures
Our journey began when Maddux had her first visible seizure cluster at 15 months. After an EEG, her final diagnosis was a rare type of infant seizures called Infantile Spasm Epilepsy. Commonly misdiagnosed as reflux. Her prognosis was that her physical and mental state would not be above mental retardation. After months of trying to find out what was wrong with Maddux, a mother's intuition, we finally had a diagnosis. We were happy to finally have a label so we could start her treatment. After 3 years of different seizure meds, hospitalizations and a special diet, her seizures are now gone. But we consider her in remission. We will never forget the shots of ACTH, the blank, over-medicated stares or the first day she went without 100 seizures. Every night we thank God for giving us another seizure-free day. Even though that was the hardest part of this journey, she was still our Maddux!
But it was our own eyes that saw these great things the Lord has done. Deutoronomy 11:7
But it was our own eyes that saw these great things the Lord has done. Deutoronomy 11:7
Her Diagnosis
During our battle with Epilepsy, Maddux began to slip away from us. Her words stopped, her smiles stopped and she acted as if she were the only one in the room. The toys stayed on the shelves. I would have given anything to have toys to clean up. It was like the love was gone from her eyes. Maddux used to not answer me because she was having a seizure and her brain couldn't "hear" me. Now she was not answering me because she just didn't know the answer. When Maddux turned 2 years old she was diagnosed with Autism . Devastating, yes, but now we could take this diagnosis and find her and bring her back. Even with that label she was still our Maddux.
He performs wonders that cannot be fathomed, miracles that cannot be counted. Job 9:10
He performs wonders that cannot be fathomed, miracles that cannot be counted. Job 9:10
Her therapy
Maddux started therapy at 18 months. She began her treatment with in-home OT and PT and as she got older she graduated into Early Intervention. She was in a full day program at Pediatric Therpay Network in Torrance, CA where she had one on one OT, PT and SLP classes as well as group sessions. Words can not express the miracles that happened behind the doors of that center everyday. Maddux was able to work with the most wonderful, caring and knowledgable people who changed all of our lives. I dedicate all of her progress to these wonderful people who I hold dear in my heart. She has come so far and I can not wait to see what lies ahead for her! She is still our Maddux!
I will remember the deeds of the Lord, yes I will remember your miracles... Psalms 77:11
I will remember the deeds of the Lord, yes I will remember your miracles... Psalms 77:11
Books I used for resources
- The Vicious Cycle: SCD Diet
- Women's Devotional Bible
- The Out of Sync Child
- Seizures and Epilepsy in Childhood, A Guide
- What You Doctor May Not Tell You About Children's Vaccinations
- Epilepsy, 199 Answers
- A Shot in the Dark
- The Purpose Driven Life
Contact
jaimelackeyphotography@yahoo.com